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Ross, Lainie
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keywords Pediatrics
overview Carolyn and Matthew Bucksbaum Professor of Clinical Ethics Professor, Departments of Pediatrics, Medicine, Surgery and the College Co-Director, Institute for Translational Medicine Associate Director, MacLean Center for Clinical Medical Ethics University of Chicago My areas of research include: ethical and policy issues in organ transplantation, pediatrics, genetics, and human subjects protections/research ethics. I am currently writing a book on sibling obligations in health care that is funded by the National Library of Medicine. Books Lainie Friedman Ross, Children, Families, and Health Care Decision-Making (Oxford University Press [UK], 1998). Lainie Friedman Ross, Children in Research: Access versus Protection (Oxford University Press [UK], 2006). Robert M Veatch and Lainie F. Ross, Transplantation Ethics, 2nd ed. (Georgetown University Press, 2015). Robert M Veatch and Lainie F Ross, Defining Death: The Case for Choice (Georgetown University Press, 2016) Lainie Friedman Ross and J. Richard Thistlethwaite Jr. The Living Donor as Patient: Theory and Practice (Oxford University Press [US], 2021 in press) AB 1982 Princeton University (School of Public and International Affairs) MD 1986: University of Pennsylvania School of Medicine Residency (1986-1989): Children’s Hospital of Philadelphia (PGY-1 &2) Columbia University (PGY-3) M Phil 1992: Yale University (Philosophy) PhD 1996: Yale University (Philosophy)
One or more keywords matched the following items that are connected to Ross, Lainie
Item TypeName
Concept Glycogen Storage Disease Type II
Concept Communicable Diseases
Concept Chronic Disease
Concept Diseases in Twins
Concept Hospitals, Pediatric
Concept Iatrogenic Disease
Concept Neuromuscular Diseases
Concept Intensive Care Units, Pediatric
Concept Tay-Sachs Disease
Concept Infectious Disease Transmission, Vertical
Concept Lysosomal Storage Diseases
Concept Genetic Diseases, Inborn
Concept Alzheimer Disease
Concept Infant, Newborn, Diseases
Concept Maple Syrup Urine Disease
Concept Pancreatic Diseases
Concept Sexually Transmitted Diseases
Concept Genetic Predisposition to Disease
Academic Article Lethal language, lethal decisions.
Academic Article Pediatricians' attitudes toward expanding newborn screening.
Academic Article Paediatricians' attitudes and practices towards HPV vaccination.
Academic Article Pediatricians are more supportive of the human papillomavirus vaccine than the general public.
Academic Article Pediatricians' attitudes toward resuscitation in children with chronic illnesses.
Academic Article Attitudes of minority patients with end-stage renal disease regarding ABO-incompatible list-paired exchanges.
Academic Article Parental understanding of newborn screening for cystic fibrosis after a negative sweat-test.
Academic Article Sickle cell trait screening in athletes: pediatricians' attitudes and concerns.
Academic Article Parents: critical stakeholders in expanding newborn screening.
Academic Article Ethics and professionalism in the pediatric curriculum: a survey of pediatric program directors.
Academic Article Maternal knowledge and attitudes about newborn screening for sickle cell disease and cystic fibrosis.
Academic Article Empirical data about women's attitudes towards a hypothetical pediatric biobank.
Academic Article A pilot study to explore knowledge, attitudes, and beliefs about sickle cell trait and disease.
Academic Article Advantages and disadvantages of neonatal circumcision.
Academic Article Ethical issues in pediatric trials.
Academic Article Should doctors reconstruct the vaginal introitus of adolescent girls to mimic the virginal state? Surgery is not what it seems.
Academic Article In defense of the Hopkins Lead Abatement Studies.
Academic Article Why "doctor, if this were your child, what would you do?" deserves an answer.
Academic Article Should children and adolescents undergo genetic testing?
Academic Article Overriding a patient's refusal of treatment after an iatrogenic complication.
Academic Article The need for consistency in 407 reviews.
Academic Article Do peer guidelines or editorial policies affect the reporting and discussion of race and ethnicity in pediatric research?
Academic Article In defense of a single standard of research risk for all children.
Academic Article Attitudes and beliefs of pediatricians and genetic counselors regarding testing and screening for CF and G6PD: implications for policy.
Academic Article Ethical issues in genetic testing of children.
Academic Article Phase I research and the meaning of direct benefit.
Academic Article Attitudes of healthcare professionals and parents regarding genetic testing for violent traits in childhood.
Academic Article Parental attitudes and beliefs regarding the genetic testing of children.
Academic Article Ethical and policy issues in pediatric genetics.
Academic Article From genetics to genomics: ethics, policy, and parental decision-making.
Academic Article Pediatricians' attitudes about screening newborns for infectious diseases.
Academic Article Are minority children under- or overrepresented in pediatric research?
Academic Article Ethical and policy issues in genetic testing.
Academic Article Lessons to be learned from the 407 process.
Academic Article Newborn screening technology: proceed with caution.
Academic Article Pediatric research and the federal minimal risk standard.
Academic Article Does familiarity breed acceptance? The influence of policy on physicians' attitudes toward newborn screening programs.
Academic Article Pediatric bioethics: reintroducing the parents.
Academic Article 50 years ago in the Journal of Pediatrics: mass screening for phenylketonuria.
Academic Article 50 years ago in the Journal of Pediatrics: identification of heterozygotes with phenylketonuria on basis of blood tyrosine responses.
Academic Article Informed consent for genetic research involving pleiotropic genes: an empirical study of ApoE research.
Academic Article Hypoplastic left heart syndrome: a paradigm case for examining conscientious objection in pediatric practice.
Academic Article Are research ethics standards satisfied in pediatric journal publications?
Academic Article When physicians forego the doctor-patient relationship, should they elect to self-prescribe or curbside? An empirical and ethical analysis.
Academic Article Disclosing the diagnosis of HIV in pediatrics.
Academic Article American Academy of Pediatrics policy statements on bioethics: summaries and commentaries: part 2.
Academic Article The ethics of type 1 diabetes prediction and prevention research.
Academic Article Ethical assessment of clinical asthma trials including children subjects.
Academic Article Reactions of pediatricians to refusals of medical treatment for minors.
Academic Article Minors as living solid-organ donors.
Academic Article Ethical issues in identifying and recruiting participants for familial genetic research.
Academic Article Informed consent in pediatric research.
Academic Article A descriptive and moral evaluation of providing informal medical care to one's own children.
Academic Article In defense of the American Academy of Pediatrics policy statement--children as hematopoietic stem cell donors.
Academic Article Newborn screening for sickle cell disease: whose reproductive benefit?
Academic Article A re-examination of the use of ethnicity in prenatal carrier testing.
Academic Article The participation of minorities in published pediatric research.
Academic Article Heterozygote carrier testing in high schools abroad: what are the lessons for the U.S.?
Academic Article American academy of pediatrics policy statements on bioethics: summaries and commentaries: part 3.
Academic Article Qualitative insights into how pediatric pay-for-performance programs are being designed.
Academic Article Newborn screening for lysosomal storage diseases: an ethical and policy analysis.
Academic Article 50 years ago in the Journal of Pediatrics: comparison of serum phenylalanine levels with growth in Guthrie's inhibition assay in newborn infants.
Academic Article Identification and management of sickle cell trait by young physicians.
Academic Article Minimizing risks: the ethics of predictive diabetes mellitus screening research in newborns.
Academic Article Whether and why pediatric researchers report race and ethnicity.
Academic Article Minority children in pediatric research.
Academic Article Adolescent autonomy in health care?
Academic Article American Academy of Pediatrics policy statements on bioethics: summaries and commentaries: part 1.
Academic Article Population screening for genetic disorders in the 21st century: evidence, economics, and ethics.
Academic Article An ethical and policy analysis of elective transplantation for metabolic conditions diagnosed by newborn screening.
Academic Article A pilot study to evaluate knowledge and attitudes of Illinois pediatricians toward newborn screening for sickle cell disease and cystic fibrosis.
Academic Article The need to promote all pediatric stem cell donors' understanding and interests.
Academic Article Relational autonomy: moving beyond the limits of isolated individualism.
Academic Article Communicating with parents about immunization safety: messages for pediatricians in the IOM report "the childhood immunization schedule and safety: stakeholder concerns, scientific evidence, and future studies".
Academic Article Teaching and assessment of ethics and professionalism: a survey of pediatric program directors.
Academic Article Addressing the ethical challenges in genetic testing and sequencing of children.
Academic Article Recommendations for returning genomic incidental findings? We need to talk!
Academic Article Young physicians' recall about pediatric training in ethics and professionalism and its practical utility.
Academic Article Universal state newborn screening programs can reduce health disparities.
Academic Article Pediatric Professionals' Attitudes about Secondary Findings in Genomic Sequencing of Children.
Academic Article 50 Years Ago in The Journal of Pediatrics: Phenylketonuria in a Negro Infant.
Academic Article Pediatric Resident Preparedness and Educational Experiences With Informed Consent.
Academic Article Theory and Practice of Pediatric Bioethics.
Academic Article The 1966 Ciba Symposium on Transplantation Ethics: 50 Years Later.
Academic Article Should Medical Errors Be Disclosed to Pediatric Patients? Pediatricians' Attitudes Toward Error Disclosure.
Academic Article 50 Years Ago in TheJournal ofPediatrics: Legislation and Advances in Medical Knowledge-Acceleration or Inhibition?
Academic Article 50 Years Ago in TheJournal ofPediatrics: Evaluation of the Effects of Terminating the Diet in Phenylketonuria.
Academic Article Kidney Donor Profile Index Does Not Accurately Predict the Graft Survival of Pediatric Deceased Donor Kidneys.
Academic Article 50 Years Ago in The Journal of Pediatrics: Conference on Treatment of Phenylketonuria.
Academic Article Attitudes and Counseling Practices of Pediatricians Regarding Youth Sports Participation and Concussion Risks.
Academic Article Reply.
Academic Article 50 Years Ago in The Journal of Pediatrics: Variability in the Manifestations of Phenylketonuria/Transient Hyperphenylalaninemia.
Academic Article The Role of Gender in Publication in The Journal of Pediatrics 2015-2016: Equal Reviews, Unequal Opportunities.
Academic Article 50 Years Ago in The Journal of Pediatrics: Maternal Phenylketonuria: Implications for Growth and Development.
Academic Article Describing how children with life threatening complex chronic conditions die.
Academic Article Gender Differences in the Authorship of Original Research in Pediatric Journals, 2001-2016.
Academic Article Pediatric Decision Making Requires Both Guidance and Intervention Principles.
Academic Article A Historical and Current Review of Newborn Screening for Neuromuscular Disorders From Around the World: Lessons for the United States.
Academic Article 50 Years Ago in The Journal of Pediatrics: Editorial Comment: Therapeutic Orphans.
Academic Article It is time to revise the kidney allocation system to restore the pediatric advantage.
Academic Article The Best Interest Standard: Same Name but Different Roles in Pediatric Bioethics and Child Rights Frameworks.
Academic Article Ethical Analysis and Policy Recommendations Regarding Domino Liver Transplantation.
Academic Article Impact of the kidney allocation system on young pediatric recipients.
Award or Honor Receipt American Academy of Pediatrics (Section on Bioethics) William G. Bartholome Award for Ethical Excell
Academic Article 50 Years Ago in The Journal of Pediatrics: Prenatal Detection of Genetic Defects.
Academic Article Missed Opportunities in the Preparticipation Physical Examination for High School Athletes.
Academic Article African-Americans with End Stage Renal Disease in the Early Years of Kidney Transplantation.
Academic Article 50 Years Ago in TheJournal ofPediatrics: Parents of the Mentally Retarded Child: Emotionally Overwhelmed or Informationally Deprived?
Academic Article In Further Defense of "Better than Best (Interest)".
Academic Article Better than Best (Interest Standard) in Pediatric Decision Making.
Academic Article Ethical Issues in Newborn Sequencing Research: The Case Study of BabySeq.
Academic Article 50 Years Ago in TheJournalofPediatrics: Renal Homotransplantations in Children.
Academic Article 50 Years Ago in TheJournalofPediatrics: Shifting Attitudes toward the Disclosure of Serious Illness.
Academic Article Abusive Head Trauma and Parental Participation in Pediatric Decision Making.
Academic Article Ethical Issues Raised by the Media Portrayal of Adolescent Transplant Refusals.
Academic Article Reflections on Charlie Gard and the Best Interests Standard From Both Sides of the Atlantic Ocean.
Academic Article 50 Years Ago in The Journal of Pediatrics: Plus ça Change: Halfway Technologies in Pediatrics.
Academic Article Reopening K-12 Schools in the Era of Coronavirus Disease 2019: Review of State-Level Guidance Addressing Equity Concerns.
Academic Article The Pediatrician's Moral Obligation to Counsel Directively Against Youth Tackle Football.
Academic Article Impact of the Coronavirus Disease 2019 Pandemic on Authorship Gender in The Journal of Pediatrics: Disproportionate Productivity by International Male Researchers.
Academic Article Reflections on Ethics and Advocacy in Child Health (REACH): Creating a Forum for Ethical Dialogue.
Academic Article Mandatory Coronavirus Disease 2019 Vaccine for Children?-Reply.
Academic Article Analyzing Trends in the Global Surge of Coronavirus Disease 2019 Pandemic Submissions to The Journal of Pediatrics.
Academic Article SARS-CoV-2 vaccine testing and trials in the pediatric population: biologic, ethical, research, and implementation challenges.
Academic Article "Medical Benefit" and Therapeutic Misconception: The Ethical Conundrum of Phase 1 Pediatric Oncology Research.
Academic Article Diversity, Equity, and Inclusion in The Journal of Pediatrics.
Academic Article Pediatric Intensivist and Pediatric Neurologist Perspectives and Practices on Death by Neurologic Criteria.
Academic Article The case against COVID-19 vaccine mandates in pediatric solid organ transplantation.
Academic Article Race in the Reading: A Study of Problematic Uses of Race and Ethnicity in a Prominent Pediatrics Textbook.
Academic Article The Use of Race, Ethnicity, and Social Determinants of Health in Three Pediatrics Journals.
Academic Article State Versus Adolescent Override for Parental Refusals to Vaccinate Against COVID-19.
Academic Article An Ethical Analysis of Newborn Congenital Cytomegalovirus Screening.
Academic Article The Journal of Pediatrics Turns 90! A Perspective on Progress, Opportunities, and Challenges.
Academic Article Is it Reasonable to Demand Reasons in Pediatric Decision-Making?
Academic Article Expounding on Shared Decision-Making in Pediatrics.
Academic Article International Pediatric Transplant Association (IPTA) position statement supporting prioritizing pediatric recipients for deceased donor organ allocation.
Concept Pediatricians
Grant Sibling Obligations in Health Care
Grant CHILDREN IN MEDICAL RESEARCH: ETHICAL&POLICY CHALLENGES
Grant NEWBORN GENETIC SCREENING:FOR WHOSE BENEFIT?
Academic Article How Race, Ethnicity, and Social Determinants of Health Are Reported in Three European Pediatric Journals.
Academic Article Representation of Women in Published Articles at 3 Academic Pediatric Journals: 2001 to 2022.
Academic Article Newborn Screening for Neurodevelopmental Disorders May Exacerbate Health Disparities.
Academic Article Pediatric Decision Making: Consensus Recommendations.
Academic Article The Philosophical Underpinning of the Family for Pediatric Decision-Making.
Academic Article Misleading Statements About Children as Living Organ Donors.
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